My first day

Welcome so glad your here! As you follow this journey with me pls feel free to ask any questions or post comments in response to anything I may blog about.I wish I could have followed someones blog to find out specific info before I made the decision to come here.That is why I decided to allow people to be a very close part of this experience.And of corse to keep my friends and family posted on my treatments and my progress.Pls forgive me in advance for spelling and punctuation issues or the lack there of as quite often I will be posting the days events after a long  day and many hrs in treatments.I will be posting truth not only about my progress but about the disease,so I have chosen to keep details off of Face Book:)As many of you know I have a very strong faith in God therefore during this difficult time I cling to all his promises and hold in my heart that He will NEVER leave me forsake me.He has a perfect plan for my life and even if my Disease does not respond to these treatments in a positive way,He is sill God and I will continue to thank Him for every day of life he gives me.He will perfect that which concerns me.I would not have survived the last very painful and difficult 7yrs without my Faith.Esp considering this disease causes my heart to stop ,and when It starst beating agian it has runs of V-tach that the Drs tell me some dont live through to talk about.I do not live the life of a sick person ,infact many of you would agree I dont  look sick or act sick.This has been a choice .When you have a chronic illness you have to do your absolute best to live as normal as you can and live every day to the fullest.My amazing husband and daughter deserve that.Drs told Jeremy 6 yrs ago to prepare for me NOT to survive.Agian one more reason I chose to appreciate every day of life Im blessed with.The drive to be well,even when I dont feel it stems from watching my daughter Brennley need her mommy to be normal and healthy.So I will fight everyday to be all I can,even when I cant.